Video EEG Results

Thank you so much for your prayers!

It has been hard to wait for the results of the video EEG 24 hr study that we had done on October 26th. It was hard to go to the appt today. The last EEG results back in June was such a blind side, that I was really fearful of what information was going to come back this time. I wanted the information, but dreaded it also.

Thankfully, it was all "good" news today.

Elissa was not having seizures during the EEG study. She did have some short bursts of abnormal brain activity while she was sleeping. They were generalized in the frontal lobe, both right and left. The doctor was happy with these results. The medicine is doing its job.

Elissa is on Keppra. She is at 6ml 2x a day. Her blood test came back normal and that the medicine is in low therapeutic levels. We are leaving it at this dosage since she seems to be doing well on it. She had an "off" day (unusually disruptive or forgetful) at school just after her EEG, so the doctor raised the medicine from 4.5 to 6ml.

Last year Darin had Elissa is ski lessons at Crystal. She loved it and was really good. We thought that she probably wouldn't be able to ski this year. If she is having short staring seizures, 1-4 seconds or longer, then she shouldn't be on skis where she would lose control. So we asked the doctor what she thought and she said, without hesitation, that she could ski. I was a bit astonished. She did not want to commit earlier this year. So Darin signed up Elissa and Zach when we got home. :-)

While we were sitting in the waiting area waiting for Elissa's appt, there was a Mom on the phone trying to get information about her son. Apparently her son had a seizure at school and was being taken to the hospital. During the conversation she said that they were just weening him off of meds and she was obviously distraught this happened. AND she was at the neurologist for her younger daughter and had to stay for that appt and try to get a hold of her son's neurologist in the same office. While the Dad was on his way to the hospital. Wow, that is a lot to handle. It made me count my blessings on how little impact Elissa's diagnosis has really had on our life and I just sat and prayed for that Mom.

There is still hope that Elissa will grow out of the epilepsy. That is our continued prayer.