Thursday, 8-13-09
Elissa 7:15pm
Sometime after 1am Elissa told us that she was seeing fireflies in the room, which of course freaked us out. The fireflies were all different colors and Elissa would point to them and say, "see them there - and there - and there" as she is pointing at them. The nurse felt that it was just the meds.
Darin left to got get some sleep at our room at The Treehouse around 2am. The hospital owns this wonderful old brick apt building and rents it ($20 a night) for families in the ICU. It was so nice to have a place to go to outside the hospital and get a few hrs of sleep. I couldn't get Elissa to go back to sleep at all. She would lay back for a minute and then ask a question or want to watch a movie or want me to be in bed with her. No sleep for me, but so - so thankful that she is awake and coherent - though the fireflies are still flying around.
Darin came back around 5am and then I went to go have a little rest. While I was gone the fireflies turned into bugs that were crawling everywhere and on her. The nurse called the Dr and he said that it may be a sign that she was having small seizures or that seizures were coming. That was definitely scary news. I woke up at 7:40am and was back in the room by 8am. We got just enough rest to keep us going.
Elissa still wasn't wanting to sleep. We were waiting to hear when we would get her in for an MRI and EEG this morning. We heard the nurse talking and heard that the MRI wouldn't be until 4pm - my heart fell. BUT then they were in our room getting ready to take Elissa. Another patient cancelled, so they "slipped" Elissa in. We know and give glory to God for clearing the schedule for us.
So Elissa was in having an MRI at 10am. They put her under for it. It was hard to watch her go in and leave her. This gave us 30mins to go grab some breakfast and a little time for me to cry and let out some of the emotions that are pent up behind the brave "mommy face". :0) When we got back Elissa had been out for a few mintues. I seen that as a good sign that they didn't find anything. I was thankful that she got this time to finally get some rest. Then Mom showed up with a gift for Lissy. It was a cute ballerina lion. :0)
Pastor Tim came by to see us. We weren't expecting him, so it was such a nice surprise to have him here and praying with us. Then around noon they started getting Elissa ready to do the EEG. It took a long time to get ready and to get her all hooked up. Chad showed up at 12:30pm and they still hadn't gotten all the electrodes on. Elissa was having a very hard time with getting the 25 electrodes attached. She was uncomfortable and tired and hungry and very crabby. So the nurse brought out popsicles to help with her mood. She really was such a brave girl through it all. The EEG was finally done around 1:30pm.
12:50pm
Then we got the news that they were going to move us out of ICU now. I was a little worried about not getting as good of care, but it ended up being really nice. We moved at 2pm. Elissa was SO excited to get out of bed and to get to ride in a wheel chair - and get another popsicle. When we got to Elissa's room there was a very cute teddy bear waiting there for her. She LOVED that. :0) The room was bigger with not as much equipment and we got our own bathroom and shower. It was also a room with a big window and a nice view of Puget Sound. Just the type that Darin likes. We often have to move rooms in hotels to get just the right view. :0)
We have heard unofficially that the MRI was clear, but we haven't heard anything about the EEG. We are eagerly awaiting the arrival of the neuro Dr. One of the nurses came in to get blood and decided that the two IVs that Elissa had in her arms were no longer good, so she took them out. Ouch!! I hate IVs, so I know the hurt that Elissa is going through. Then the nurse put in a new one. It is SO sad to see her hurting like that. She got this fancy little glove to keep the IV in place. She thought it was cool. :0)
Uncle Chad and Aunt Holly came to see Elissa a little after 7pm. They brought yummy cake that was suppose to be for Nana's surprise birthday party last night - so we had some and gave the rest to the nurses. They brought Lissy a whole bag full of fun gifts - two stuffed animals, Tinkerbell sticker book and puzzle and some chaptstick, lip gloss and nail polish. Of course Elissa had to get the polish out and she let Auntie Holly paint her toenails. A girl has to look good! :0) It was a fun visit, but Elissa started pooping out and getting extremely crabby just after 8pm. So the guests left and we worked on settling her down and getting her to sleep.
Darin left to go to the Treehouse a little after 9pm. I got Elissa to sleep and then I worked on my computer updating everyone and answering emails, texts and FB messages. What a great thing technology is! I was able to text people to pray and then post on FB for people to pray and others were able to easily ask their friends to pray - it was awesome! Then to get all the encouragement from people via text, FB and phone was SO encouraging. It really made a world of difference to us.
Thank you, Thank you, Thank you!
Darin left to got get some sleep at our room at The Treehouse around 2am. The hospital owns this wonderful old brick apt building and rents it ($20 a night) for families in the ICU. It was so nice to have a place to go to outside the hospital and get a few hrs of sleep. I couldn't get Elissa to go back to sleep at all. She would lay back for a minute and then ask a question or want to watch a movie or want me to be in bed with her. No sleep for me, but so - so thankful that she is awake and coherent - though the fireflies are still flying around.
Darin came back around 5am and then I went to go have a little rest. While I was gone the fireflies turned into bugs that were crawling everywhere and on her. The nurse called the Dr and he said that it may be a sign that she was having small seizures or that seizures were coming. That was definitely scary news. I woke up at 7:40am and was back in the room by 8am. We got just enough rest to keep us going.Elissa still wasn't wanting to sleep. We were waiting to hear when we would get her in for an MRI and EEG this morning. We heard the nurse talking and heard that the MRI wouldn't be until 4pm - my heart fell. BUT then they were in our room getting ready to take Elissa. Another patient cancelled, so they "slipped" Elissa in. We know and give glory to God for clearing the schedule for us.
So Elissa was in having an MRI at 10am. They put her under for it. It was hard to watch her go in and leave her. This gave us 30mins to go grab some breakfast and a little time for me to cry and let out some of the emotions that are pent up behind the brave "mommy face". :0) When we got back Elissa had been out for a few mintues. I seen that as a good sign that they didn't find anything. I was thankful that she got this time to finally get some rest. Then Mom showed up with a gift for Lissy. It was a cute ballerina lion. :0)
Pastor Tim came by to see us. We weren't expecting him, so it was such a nice surprise to have him here and praying with us. Then around noon they started getting Elissa ready to do the EEG. It took a long time to get ready and to get her all hooked up. Chad showed up at 12:30pm and they still hadn't gotten all the electrodes on. Elissa was having a very hard time with getting the 25 electrodes attached. She was uncomfortable and tired and hungry and very crabby. So the nurse brought out popsicles to help with her mood. She really was such a brave girl through it all. The EEG was finally done around 1:30pm.
12:50pm
Then we got the news that they were going to move us out of ICU now. I was a little worried about not getting as good of care, but it ended up being really nice. We moved at 2pm. Elissa was SO excited to get out of bed and to get to ride in a wheel chair - and get another popsicle. When we got to Elissa's room there was a very cute teddy bear waiting there for her. She LOVED that. :0) The room was bigger with not as much equipment and we got our own bathroom and shower. It was also a room with a big window and a nice view of Puget Sound. Just the type that Darin likes. We often have to move rooms in hotels to get just the right view. :0)1:56pm
2:15pm with her new bear "Beary"
Dad showed up around 2:30pm, so Darin and I took the opportunity to leave the room and go have some lunch/dinner together. Mom climbed in to bed with Lissy, at her request, and rubbed her back (also at her request) and got her to fall asleep. When we returned she was still sleeping. Patty and Zach showed up around 4pm. Elissa was asleep the whole time that Zach was there and I didn't get any pictures of him there - I can't believe that. :0( Mom and Dad then left and took Zach with them to stay the night with them. He is having a grand time!
2:15pm with her new bear "Beary"
Dad showed up around 2:30pm, so Darin and I took the opportunity to leave the room and go have some lunch/dinner together. Mom climbed in to bed with Lissy, at her request, and rubbed her back (also at her request) and got her to fall asleep. When we returned she was still sleeping. Patty and Zach showed up around 4pm. Elissa was asleep the whole time that Zach was there and I didn't get any pictures of him there - I can't believe that. :0( Mom and Dad then left and took Zach with them to stay the night with them. He is having a grand time!2:59pm
We have heard unofficially that the MRI was clear, but we haven't heard anything about the EEG. We are eagerly awaiting the arrival of the neuro Dr. One of the nurses came in to get blood and decided that the two IVs that Elissa had in her arms were no longer good, so she took them out. Ouch!! I hate IVs, so I know the hurt that Elissa is going through. Then the nurse put in a new one. It is SO sad to see her hurting like that. She got this fancy little glove to keep the IV in place. She thought it was cool. :0)6:20pm
Uncle Chad and Aunt Holly came to see Elissa a little after 7pm. They brought yummy cake that was suppose to be for Nana's surprise birthday party last night - so we had some and gave the rest to the nurses. They brought Lissy a whole bag full of fun gifts - two stuffed animals, Tinkerbell sticker book and puzzle and some chaptstick, lip gloss and nail polish. Of course Elissa had to get the polish out and she let Auntie Holly paint her toenails. A girl has to look good! :0) It was a fun visit, but Elissa started pooping out and getting extremely crabby just after 8pm. So the guests left and we worked on settling her down and getting her to sleep.7:38pm
Darin left to go to the Treehouse a little after 9pm. I got Elissa to sleep and then I worked on my computer updating everyone and answering emails, texts and FB messages. What a great thing technology is! I was able to text people to pray and then post on FB for people to pray and others were able to easily ask their friends to pray - it was awesome! Then to get all the encouragement from people via text, FB and phone was SO encouraging. It really made a world of difference to us.
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